Tuesday, November 22, 2022

NEW YORK CITY MARATHON 2022







I always say life is like a marathon, full of good moments, hard moments, and all those in between. The NYC 2022 marathon was no different. It was full of good moments, hard moments and everything in between. 

The first hard moment started with training. I came down with COVID April 2022. My first sign was, of course, horrible diarrhea. The COVID diarrhea lasted for months and it caused both a Crohn’s and microscopic colitis flare. Trying to run with uncontrollable diarrhea seemed impossible.  I did my usual planning ahead that I do for all my training runs; a necessity as an IBD patient. Before a normal run I always know where the bathrooms, porta potties and woods are located. And I would run at least a mile loop before thinking of joining anyone else on a run.  And I get up an hour before heading out the door for an everyday run. 


I love love running!  It is my passion and makes me so happy!  And when I deal with flares I still run. So the hard part was not the running and dealing with the flare but dealing with the severity of the flare and the massive isolation. I spent much of this training cycle running solo because I never knew when I would have to use the bathroom (porta potty, the woods).  It also caused slower than normal runs because of all the stops I had to make.  It would not be unusual for me to stop at least five times on a 6-7 mile run.  And there were more than two handfuls worth of runs where I would have to come home to shower because of an accident on the roads.  


There were many hard parts about the marathon but the ones that caused me the most stress and anxiety was the bus ride to the start and running across the beautiful Verrazano bridge.  The bus ride to the start is about 40 minutes and then you have security checks.  There are zero bathrooms on the bus ride or on the walk to the security check.  So score one for me when I made it on the bus through the security check with no bathroom issue. Good moment- ran over the Verrazano bridge with no accident.  


Now mind you, I did do my pre race prep the night before and morning of the race. I did an enema and suppository starting around 5:00 pm the night before the race. The morning before the race I got up at 3:30 am, ran an easy mile on the treadmill, took some lomotil (prescription strength imodium). I set out to walk to the buses which were about 10 plus blocks from my hotel and had to make a fast dash into a bathroom.  


A good moment. I met a person from the Charlotte area when I exited the building.  Someone to chat with on the way down to the buses, in the long line to the buses and while walking to the athletes village. After getting to the start village I had to say goodbye to my new friend because we were in different start villages.  But on the way to my start village I met a woman named Kelli. Yes, Kelli with an I just like my name. We sat together for the entire time before the race.  


All the fun began when the race started. The part I loved the most was after crossing the bridge- the fans, the noise! But the in-betweens were the thoughts in my  head about the weight gain, the lack of true training.  It came and went through the race.  Thankful for being able to run a marathon and then moments later disappointed in my running pace and how I looked physically. 


 


It seems easy for people to comment on my weight loss, weight gain, weight being the same.  For those that want to know. I know my weight.  I know when I have lost too much, gained too much or am at my normal weight.  Most of the time this change is not my doing but is because of my autoimmune conditions and medicine I have to take. No need to comment on the weight. Just be a support person or if you can not do that then make no comments on the weight front.  Believe me we Crohn’s people know. I get weighed every 6 weeks for my infusion.  


I loved hearing and seeing my friend Suzanne on First Avenue. She took this photo of me when I looked back because she was yelling my name. Thanks Suzanne for being there!




And I loved that my best friend from NYU, the amazing Kate, got a group of kids to yell for me farther down First Avenue.  So fun!  BUT one of my favorite parts was entering Central Park.  I fell in love with running in Central Park when I went to NYU and did long runs and races there.  My first half marathon ever was in Central Park! 



Near the end I could hear Kate yelling for me but I could not see her and then I heard Ali (she has been like my fav for a long time as a runner because she has Crohn’s and has now made it to the big leagues in the running broadcasting community) announce my finish by saying here comes a Team Challenge Finisher! I cried after I finished because I really was not sure with all my Crohn’s and other autoimmune conditions that I would make it to the finish line but I did.  


After I crossed the finish line I saw someone I ran with once in Charlotte right before the marathon. A young fast runner and super sweet and humble.  I actually saw her pass me (she started a wave behind me) and I thought there goes Emily she looks great.  I think it was around mile 18-19.  It was her first marathon and she was killing it on this hot day!  As I was walking down the finishers path I saw her sitting down. I sat down next to her and we talked for a good bit. And then I realized I needed to get up or I would be stuck there so I knew she had to get up.  I told her that and we got up and walked out of the park together. It was so fun to reconnect with her and hear her experience. Y’all she rocked this race!




I was excited to finish the NYC marathon because I felt I was under trained because of Crohn’s.  BUT I am more excited and proud of the fact that my husband Pete and I raised over $30,000 for Team Challenge, the endurance fundraising arm of the Crohn’s and Colitis Foundation of America. Thank y’all who believed in and supported my cause.  Let’s pray for a better life for those with Crohn’s and Colitis and for more understanding and support from our community.  




Tuesday, October 12, 2021

THE BOSTON MARATHON (PR)

 

One of my biggest fans supported me during this race.  The best daughter ever- Ginny Lash!  I can say that because she is my only daughter!  I also have 3 wonderful boys and an amazing husband but they could not make it to Boston.  Ginny and I had an amazing long weekends visiting colleges for her (lol!) and hanging in Cambridge and Boston.  Best Celiac Spot hands done was Violette GF Bakery!



And this I did and I am so excited about it!  I was in a mild Crohn's flare and I reached out to my Team Challenge Crohn's and Colitis Foundation peeps for help.  I was thinking I should take an enema the night before the marathon.  I have done plenty of those but never before running a long run or race!  But I was in a bad state.  Last 10 mile run the Wednesday before the marathon had me with bathroom stops 6 times I believe.  I could not have that happen here.  So based on some feed back from the Team Challenge peeps I decided to do an enema the night before the race.  So glad I did.  I still got up the morning of and ran .5 miles on the treadmill (usually do at least a mile) and then took my prescription strength Imodium after the treadmill run and also before I walked out the door to get on the bus.  It was successful. Yes!  I was not tapered for this race as I am training for Ironman Florida and although my amazing coach, Susan Airheart with Tri with Heart coaching, had me only running 1 mile on Saturday (after my normal IM training up to that)  BUT I walked 10 plus miles on Friday and Saturday visiting schools with Ginny.  And likely 6 niles on Sunday just trying to find celiac friendly gluten free food (yes there is a difference bw GF foods for those who decide they feel better on a GF diet and a person with celiac disease who have major GI issues if there is a trace of gluten in their food!).  So I start the marathon and it was so amazing.  I have done Boston many times before but I have always been a head case about it and crashed and burned.  This marathon was just a long run for training for IM Florida.  And guess what I did.  I had my Boston PR (which is slower of course than my normal marathon times or else I would not be running Boston).  Just running for fun.  It got warm out there.  I poured water over my head and down my back!  I talked to lots of people along the way.  Talked to the amazing volunteers.  And the Boston Marathon volunteers are truly amazing.  Had a pit stop.  Danced to some music.  Clapped for the people cheering us on.  It was just AMAZING!!!!!!!!


Saturday, September 18, 2021

THE 2021 RACE SCHEDULE




What a yucky photo to upload, but yes I finished 20 mile run this am! 72-74 degrees at the start and humidity was 74 percent.  AT 4:30 AM.  5 pit stops for major gi issues- one that involved stopping at my house and changing my running shorts.  Life with crohns and celiac. gotta love!

"RACE" SCHEDULE for 2021

Race is in quotes because not planning on truly racing these events.  But it is a comeback start!

Boston Marathon October 11, 2021.  

Qualifying Race was Grandma's Marathon where I was dealing already with planter fasciitis!  2019 race time was 3:44:25.  I thought I might PR this race but a major bathroom stop and a toenail falling off kinda stopped that one.  BUT what an amazing race.  So beautiful.  I so want to do this one again!  AND this race is about taking my senior girl during her fall break to see schools in the Northeast.  Quality time with my only girl!  And to take in Boston marathon.  How fun is that one!  As my boys say- let's go!  Oh, did I mention that I had plantar fasciitis release surgery end of Dec 2020.  Still trying to get my speed and distance back.  BUT loving being out there!

Ironman Florida November 6. 2021

It is comeback time!  Come back from surgeries and medical diagnoses and fear of COVID since I am immuno suppressed.  

Medical Conditions.  Celiac Disease (2010 diagnosis- sure I have had it since I was a teenager); hypothyroidism (can not remember when I got that one); Secondary Adrenal Insufficiency (either autoimmune or genetical according the my amazing medical doctors) diagnosed in 2016 at the Mayo Clinic in Rochester, MN; Crohn's Disease (with fistulas) diagnosed in 2018.

Last Triathlon September 2015.  Last marathon was the virtual Boston marathon where I limped (waiting for surgery on my foot) along because I thought the jacket was so amazing!

Monday, September 13, 2021

Another Day in Training. Another Day in life with Crohn's Disease. Another Day to Celebrate!


 

So each day I look for things to be thankful for because living with many chronic illnesses can well make you a little nutty and why me approach.  And I want to be the not why me but the yes I can (like the little engine that could) accomplish what I want ( at least at this time with my medical conditions bc only my God knows what the future holds).   And today and really every single day of my life I am so thankful and blessed and humbled to be the wife of my amazing husband and mom of the most amazing four children ever!  And sorry the two most perfect dogs (sorry bc no photo of them today).  And I have the most amazing extended family around me.  So today, recovery day, I swam 3200 yards and did a light weight workout.  And today I will do a sitz bath because the old fistula has decided to act up.  But today!  I swam, I put on a cute skirt and shirt, dried my hair, made breakfast for my two still at home and hugged my hubby. And yes my stomach today looks like I am 5 months pregnant so am sure the next 12-18 hours will be fun.  But I am gearing up for a 100 mile bike ride tomorrow and 3 miler run. Thank you Susan Airheart for my training plan.  Until tomorrow folks!


AND TODAY IS CELIAC DISEASE AWARENESS DAY.  And yes I have celiac disease.  And mine is not simple bc if I get glutened bc someone decides it is okay not to change their gloves, etc when preparing my meal I can easily go into a mini crohn's flare that can last 4 weeks or more.  So please when someone says they have celiac disease listen to what they need you to do to keep them safe!  Thanks for your support!

Happy Monday everyone!

Sunday, February 16, 2020

Adrenal Insufficient Warrior



My Adrenal Insufficient pal and co warrior is going to London to run a marathon!  How exciting is that?!!!  I hope to make it to London one day to run the marathon but I am currently in a boot after surgery for my planter fasciitis.  So I will have to live my dreams through Brian right now.  Go Brian Go!

We both have adrenal insufficiency but different kinds.  He was diagnosed shortly after birth.  He has Salt- Wasting Adrenal Insufficiency ("SWAI"). I have secondary adrenal insufficiency, genetically caused.  Both our adrenal glands do not produce the naturally occurring hormone CORTISOL.


The hormone CORTISOL has many functions in the body

Cortisol helps break down fats, proteins, and carbohydrates in your body. It also controls blood pressure and affects how your immune system works.  It also is the stress hormone.  

 I do not produce the hormone cortisol but I do produce the hormone aldosterone.  My secondary adrenal insufficiency is genetically caused but found later in life.  So like Brian I take hydrocortisone to replace the hormone cortisol I do not make.  And have an emergency injection for when I get sick, get injured or feeling unwell.

He has two fundraising pages.The JustGiving page is specifically to donate to St. John Ambulance, the charity that he is running for at the marathon and that has generously allowed him to get an entry into the London Marathon. He also has a GoFundMe page to help with all London Marathon expenses.  He says hank you for any help you may be able to provide. Share the links with anyone you know that may want to help.

https://adrenalinsufficientwarriorathlete.blogspot.com